• Sat. Oct 23rd, 2021

Stories of people with multiple sclerosis beyond Covid, the campaign begins

Byeditorial

May 14, 2021

Multiple sclerosis must not prevent those affected by it from doing what is most important to them, from fulfilling their dreams and achieving their goals. A warning that today, a year and a half after the start of the Covid-19 pandemic, is even stronger and must push those living with the disease to never give up and continue their treatment path. This is the ‘fil rouge’ that links the testimonies at the center of the “Checkmate. Bold stories of people with multiple sclerosis” campaign, created by Novartis Italia in collaboration with Aism – the Italian Multiple Sclerosis Association and a team of clinical experts. Video stories that want to be an inspiration for all those people who have experienced the diagnosis and, more recently, the disease during the Covid-19 emergency, as a reason for arrest, showing that the limits imposed by the disease can be overcome. Stefano’s solitary journey on foot, Alessio’s 100 days in motion towards North Cape, the professional success of Chiara – who took over the family business – and Marco – who with his tenor stamp was applauded in many theaters – as well as Anna’s wish for motherhood fulfilled, Simone’s courage in taking part in the Ironman and Valentina’s desire to help those like her who live with multiple sclerosis. The stories will live on Novartis’ BrainzoneIt Facebook page and on the website www.livinglikeyou.com/it/match-check. Personal experiences – reads a note – that tell how, with determination and with the right support, it is possible to take back those spaces that are imagined lost due to illness and the limits imposed by the lockdown, scoring one’s winning move, checkmate, which puts multiple sclerosis in the corner. “The chess metaphor well represents the game that a person must play against multiple sclerosis (Sm) from the moment of diagnosis: how the most difficult chess games are won thanks to a good attack and defense strategy, mixed with a great ability to adapt, in the same way in the difficult game against the disease you need courage and determination, a relationship of trust with your doctor, the support of loved ones “, comments Luigi Lavorgna, Aou neurologist ‘Luigi Vanvitelli’, Chair of the ‘Digitale’ study group of the Italian Society of Neurology (Sin). “It is thanks to them that the pieces on the board (therapy, rehabilitation, support, work, hobbies, etc.) can move by predicting and blocking the opponent’s moves, thus bringing the player closer to victory”, he stresses. The stories of ‘Checkmate’ touch all aspects of life, from the professional to the most intimate and personal, such as parenting, and tell all the areas in which SM often represents a limit. In the last year, this apparently unbeatable opponent has also been joined by the health emergency from Covid-19: according to the Aism Barometer, one of the most serious effects of the pandemic is certainly the psychological impact. In fact, a widespread lack of distance psychological assistance was combined with situations of strong social isolation, anxiety and depression, both for people with MS and for their caregivers, who found themselves facing situations of strong pressure, also related to the difficulties of reconciling work commitments at home with the increased needs for care and assistance of family members, in particular those with more severe disabilities. “Fortunately, in recent years, in parallel with the increase in knowledge on the biological mechanisms underlying disease, new treatment options have been identified and developed, some already available to the medical profession, others on the way “, says Claudio Gasperini, coordinator of the Multiple Sclerosis Study Group of Sin. “This allows us on the one hand to diagnose the onset of the disease earlier and to monitor its progress, on the other hand to identify the best solution for each patient, calibrating, almost personalizing, the therapeutic path in the light of the specific clinical picture” . Among the weapons to fight the disease, there has always been scientific research, which makes it possible to have increasingly innovative drugs and early diagnosis available today. Yet only in 2020 due to the pandemic there has been a general postponement of services non-deferrable health care centers: 88% of SM Centers have postponed or canceled check-ups. “As the stories of our protagonists show, SM is an unpredictable and complex pathology that affects both the physical and emotional well-being of the person”, underlines Marinella Clerico, head of Ssd specialist neurological pathologies, Aou San Luigi Gonzaga and associate professor of the Department of Clinical Sciences and and biological at the University of Turin. “The therapeutic approach must therefore be holistic and multidisciplinary and include both the continuous intake of pharmacological treatments, but also a personalized rehabilitation path thanks to the involvement of various health professionals (physiatrist, neurologist, physiotherapist, occupational therapist, speech therapist, nurses, psychologist, social worker, urologist, sexologist, neuropsychologist, ophthalmologist), each specialized in their own field of application “”. “Multiple sclerosis is certainly a formidable adversary, whose moves are difficult to predict and this year we have had to deal with it while also facing another emergency, that of the pandemic. What we have been through and are facing will have a price, but we want to continue to fight for a world without MS. Today we cannot beat it completely yet but, thanks to the treatments, research and help that can come from their family and social unit, people with MS can manage to maintain or regain a good quality of life with an expectation not far from those who are not affected by this disease “, comments Francesco Vacca, national president of Aism. With this campaign “we want to celebrate the victories achieved by people with SM, people who in their normality are extraordinary and can be an example for many others, especially for young people who risk isolating themselves and not reacting to the disease”. “The fact that MS affects a large number of young people and progressively leads to physical and cognitive disabilities means that it can be considered a real health emergency: in addition to affecting the overall health of patients, it interferes with school training and professional life , the social one and impacts on the autonomy of the individual, a fragile person who needs extensive assistance “, concludes Gioacchino Tedeschi, president of Sin. “The Covid-19 emergency overlapped with the multiple sclerosis emergency. Today we hope – he concludes – that, as the discovery of vaccines is helping us to emerge from the pandemic, in the same way scientific research on multiple sclerosis will take further steps forward “.

One thought on “Stories of people with multiple sclerosis beyond Covid, the campaign begins”
  1. editorial says:

    https://connect.informs.org/network/members/profile?UserKey=1eb19796-88ca-465d-8865-e3bc9d8f767b
    https://downloadthehypnotunezneworigins.odoo.com/
    https://connect.informs.org/network/members/profile?UserKey=ab244fea-67a6-407f-86fd-bb3ccce709ab
    https://downloadtoxicinsidefireep.odoo.com/
    https://connect.informs.org/network/members/profile?UserKey=5fcb0e4f-b7da-40e6-b25b-37a88966d5f0
    https://connect.informs.org/network/members/profile?UserKey=8e0085e9-b265-4d7b-bf8f-75f78ab419a3
    https://connect.informs.org/network/members/profile?UserKey=168d0556-5240-4d61-8231-e5c550301a85
    https://connect.informs.org/network/members/profile?UserKey=cd587aa4-af1a-4169-bb5e-d5bc5bfb8cd9
    https://downloadvariousartistsmindfulriddimep.odoo.com/
    https://downloadsantroxana.odoo.com/
    https://connect.informs.org/network/members/profile?UserKey=7bf194c6-51d2-42e4-aed5-ee4d01264408
    https://connect.informs.org/network/members/profile?UserKey=e01eecea-c374-4965-a25e-a85b6a1af7aa
    https://downloadalainperezalexanderaaromperelcoco.odoo.com/
    https://connect.informs.org/network/members/profile?UserKey=1eab7765-4084-4d76-96f8-831f8167dfc9
    https://connect.informs.org/network/members/profile?UserKey=625415fc-f580-46e5-bfb4-e27978b8c9af
    https://connect.informs.org/network/members/profile?UserKey=78488871-96d0-4090-874d-c28e1c573c3f
    https://downloadshaolincowboy21hoursep.odoo.com/
    https://connect.informs.org/network/members/profile?UserKey=0057bfe6-1d85-4ad4-a9f4-4fe39b0b8245
    https://connect.informs.org/network/members/profile?UserKey=e4c79094-e70d-4aea-9c25-846ddd88c2b8
    https://downloadsleepingatlastatlasspace2ep.odoo.com/
    https://connect.informs.org/network/members/profile?UserKey=f9ea0675-ae53-409e-a2fd-417f34ea9cad
    https://downloaddeafheartsoftheartattackinter.odoo.com/
    https://downloadeditorsindreamdeluxeversion.odoo.com/
    https://downloadleamicheleplaces.odoo.com/
    https://connect.informs.org/network/members/profile?UserKey=0d53159a-f37d-4734-be7f-1eecc82a1481
    https://connect.informs.org/network/members/profile?UserKey=d80bf50f-f4a3-453c-8118-7bc867658a64
    https://connect.informs.org/network/members/profile?UserKey=4ca03d8c-fb7e-41f9-8fb5-4864fb046e23
    https://connect.informs.org/network/members/profile?UserKey=9de81078-3f74-4098-80b0-433f6ad91ead
    https://connect.informs.org/network/members/profile?UserKey=34937d51-c6d8-4069-a75c-cd18732d19bf
    https://connect.informs.org/network/members/profile?UserKey=785d3e2e-bd6d-4bff-b70f-62f87952d25c
    https://connect.informs.org/network/members/profile?UserKey=d84885d1-6c22-48b1-9ea7-2d58acb7ea53
    https://connect.informs.org/network/members/profile?UserKey=e2ec7bd9-427a-48b0-a4d0-52d2fd3a1b59
    https://connect.informs.org/network/members/profile?UserKey=0cfc559a-76a2-45ab-a9fe-b67e9cf39286
    https://connect.informs.org/network/members/profile?UserKey=b52c5a16-898f-4672-87fc-d661ba4a559c
    https://connect.informs.org/network/members/profile?UserKey=8db2017e-2401-4b22-a6d6-deb825cadd23
    https://connect.informs.org/network/members/profile?UserKey=22d54a9d-5706-49e2-b06b-a7380af19ffb
    https://connect.informs.org/network/members/profile?UserKey=c661da9b-08a8-4dee-8fe7-8870829c7dfa
    https://downloaddanheimskapanir.odoo.com/
    https://connect.informs.org/network/members/profile?UserKey=b8f3c99d-b833-4b42-98e3-e6851fecbe07
    https://connect.informs.org/network/members/profile?UserKey=4f69f5ac-83e1-4e35-af9a-a0e41567b534
    https://connect.informs.org/network/members/profile?UserKey=069611da-5e6f-45f4-ba58-9d976a5ee191
    https://connect.informs.org/network/members/profile?UserKey=7ee8234b-60d7-441b-bb02-16d435a3ddd1
    https://connect.informs.org/network/members/profile?UserKey=e50a9746-508e-46ba-8459-9abdabd26618
    https://connect.informs.org/network/members/profile?UserKey=c42fb366-f87b-4e69-835b-751c89e034db
    https://connect.informs.org/network/members/profile?UserKey=3ba1b6e1-748e-4daf-b949-32f19e5c3b3d
    https://connect.informs.org/network/members/profile?UserKey=966bc285-b925-4bee-83ad-c272ce48595f
    https://connect.informs.org/network/members/profile?UserKey=9fd0572d-36d6-42a4-8967-d7914db0c4e3
    https://connect.informs.org/network/members/profile?UserKey=d872a7e3-7cd4-4c0b-87f9-7b4f46bc3f66
    https://downloadbidemiolaoba79hrs1.odoo.com/
    https://connect.informs.org/network/members/profile?UserKey=e9c4aca5-19f1-46a4-836a-9fc2fd1da900

Comments are closed.