Do not surrender to psoriasis and psoriatic arthritis, but take back your living spaces and face the disease and the treatment path openly together with specialist doctors. This is the invitation of the ‘Psoriasis I have to do it too’ campaign, addressed to all patients with psoriasis and psoriatic arthritis, at the start in view of the World Psoriasis Day which is celebrated on 29 October. The goal of the initiative, promoted by Amgen, is to improve patient care and quality of life. The campaign leverages realistic images of the two diseases, which show the consequences of their progression in the absence of treatment. Images accompanied by phrases that characterize the attitude of distrust and resignation shared by many patients. On the portal www.psoriasicentroanchio.it, thanks to the initiative, patients can improve the dialogue with the specialist, tell their symptoms and the impact that the disease has on daily life, as well as find information on pathologies and the map of specialist centers. . Psoriasis is also involved with the associations Adoi (Association of Italian hospital dermatologists-venereologists), Sidemast (Italian society of medical, surgical, aesthetic dermatology and sexually transmitted diseases), Adipso (Association for the defense of psoriasis), Anmar (National Association of Rheumatic Patients), Apiafco (Italian Psoriatic Association Friends of the Corazza Foundation) and Apmarr (National Association of People with Rheumatological and Rare Diseases). In Italy there are 2.3 cases of psoriasis per 1,000 people a year and over 1.5 million people live with psoriasis, an autoinflammatory disease that manifests itself with skin plaques; in the moderate-severe form, the plaques are extensive and can affect specific areas of the body. The disease can also be present together with other comorbidities that complicate the patient’s clinical picture. In some cases, psoriasis can develop into psoriatic arthritis, a debilitating disease that involves the joints and can manifest itself in different ways; in Italy it affects about 300 thousand people. Psoriasis is a particularly complex and more widespread skin disease than it may seem – explains Giuseppe Monfrecola, Sidemast president – The body sites most affected are the scalp, elbows, knees, trunk, hands, feet and nails. The main signs are red patches covered with whitish scales accompanied by peeling, itching and sometimes pain. Given its inflammatory, chronic and systemic nature, psoriasis tends to evolve if left untreated. In 75% of cases, skin psoriasis precedes joint involvement and in about 30% of cases psoriatic arthritis with joint and tendon involvement may occur. “Despite the prevalence and impact on quality of life, these two pathologies they are often underdiagnosed and undertreated, with the risk of favoring their progression and aggravating the patient’s state of health and quality of life. The prevalence of undiagnosed psoriatic arthritis is estimated to be 15.5% worldwide. a note – One in two patients with psoriasis remains without treatment for a long time, up to 5 years, and 56% of patients with more than 20% of the body affected by psoriatic plaques are not on treatment because they are disheartened. “Often the patient is frustrated by the search for an effective treatment due to a complex and ineffective treatment process – says Francesco Cusano, director of Uoc Dermatology Ao ‘San Pio’ Po ‘Gaetano Rummo’, Benevento, and president te Adoi – but with adequate and timely treatments psoriasis can be prevented from progressing, worsening health conditions and quality of life, with a significant impact on work, interpersonal relationships and the psychic sphere. The prevalence data, which speak of 2.5-3% of the population affected by the disease, suggest an important undeclared, mostly due to late diagnosis and specialist care. And the number of patients not treated with any of the therapies available today is certainly large. It is essential to contact a dermatologist who can direct you to a referral center that can offer a range of appropriate care solutions. “” Patients are often discriminated against and the problems that afflict them are a source of shame and embarrassment, however unjustified – declares Mara Maccarone, president of Adipso – Those who live with this disease, often very young, tend to live their condition in solitude, with heavy repercussions on the quality of emotional, relational and working life. To all this is added the state of anxiety due to the fear that the disease, after a period of remission, may recur and perhaps in a more severe way. In all this, the patient sometimes gets depressed and loses confidence in treatments, adhering less and less to treatments. “An obstacle in the treatment process – continues the note – is also represented by the different perception of the severity of the pathology between the specialist and the patient. . According to the data of the multi-nation real-word Uplift study (Understanding psoriatic disease leveraging insights for treatment), while for patients the severity of the disease is mainly defined by the type of symptoms (23.7%), by the time of illness ( 10.6%) and the location of the skin lesions (10.6%), for dermatologists the main factor is the impact on the overall quality of life (21.4%). The perception of priorities is also different: for the patient the most important objective is the reduction of itching (16.8%), which is evaluated by the dermatologist as not very relevant and placed in seventh place; for the dermatologist in the first place there is the improvement of the quality of life (21.6 %). “Pa Psoriatic patients and dermatologists have a different perception with respect to the severity of the disease and the target of treatment – confirms Valeria Corazza, president of Apiafco – For the former it is important to reduce itching, control symptoms and obtain clean skin, the latter are interested in better quality 360 degrees of life and the reduction of inflammation. This disconnection can be overcome by re-establishing mutual trust and dialogue between doctor and patient. “Psoriatic arthritis is a disease that can develop as a result of psoriasis, but about 10-15% of patients can develop it even earlier: it has 6 types of manifestations (peripheral arthritis, enthesitis, dactylitis, axial disease, psoriasis and nail psoriasis), usually onset between the ages of 30 and 50 with joint swelling, pain and stiffness, and is characterized by alternating periods of remission and exacerbation. L ‘information is the essential tool to be able to diagnose it as soon as possible. “It is important to learn to listen and recognize the signals that the body sends in order to be able to promptly report them to the family doctor who will refer the patient to a dermatologist or rheumatologist specialist – underlines Antonella Celano , President Apmarr – Knowing how to recognize the signs and symptoms allows you to quickly arrive at a diagnosis and give the opportunity the specialist to best prescribe the most appropriate therapies for each individual case to cure the disease which, if not treated early, unfortunately leads to important outcomes and disabilities. It remains essential to refer to a specialist and a reference center for the treatment of psoriatic arthritis “. The psychological discomfort associated with psoriatic arthritis” is very strong and is linked – remarked Silvia Tonolo, president of Anmar – as well as to external manifestations, to pain which is a subjective component of the symptomatology, not always taken into sufficient consideration by the rheumatologist specialist precisely because it is not tangible. Then there are the inconveniences related to social and working life. The majority of patients are between 18 and 50 years old, so they are in full productive age. This involves profound changes in lifestyle, with repeated absences from school or work and choices strongly conditioned by the disease up to the re-evaluation of the job position and important renunciations given the impossibility of achieving one’s goals “.” The Psoriasis campaign has something to do with it. I too is based on the principle that the patient must be encouraged to be increasingly proactive in the therapeutic process that concerns him, and must be even more so in the management of complex pathologies such as psoriasis and psoriatic arthritis – concludes Maria Luce Vegna , medical director of the American Amgen Italia – It is extremely important that the psoriatic patient faces the treatment path with confidence, talking to the specialist and turning to specialized centers when necessary. In this way it is possible to maximize the potential of the therapies available in an area, precisely that of chronic inflammatory diseases such as psoriasis, where pharmacological research is making rapid progress. These are positive developments that see Amgen, a protagonist in this area for 20 years, once again at the forefront, thanks to an R&D pipeline that currently counts on 7 drug candidates and a substantial strengthening of innovation capacities, made possible by recent acquisitions and collaborations started with international partners very active in the search for new treatments in the inflammatory and dermatological fields “.
1 thought on “At the start of the ‘Psoriasis too’ campaign for 1.5 million patients”
Comments are closed.
Download Ken Wakui – Tokyo Revengers Capítulo 245 Ebook PDF epub 2022-04-06
Download Chloé Cooper Jones – Easy Beauty Ebook PDF epub 2022-04-05
Download Marie-Haude MERIGUET – Vivantes Ebook PDF epub 2022-04-06
Download Ren Eguchi – Campfire Cooking in Another World with my Absurd Skill (MANGA) Volume 7 Ebook PDF epub 2022-04-06
Download Patricia Highsmith – Penguin Readers Level 6: The Talented Mr Ripley (ELT Graded Reader) Ebook PDF epub 2022-04-07
Download Desirée Bela-Lobedde & Lydia Mba – Color carne Ebook PDF epub 2022-04-07
Download P. G. Wodehouse – Best of Humor: Collection of P. G. Wodehouse (Set of 3 Books) Mike/ Piccadilly Jim/ My Man Jeeves Ebook PDF epub 2022-04-07
Download John Richardson – A Life of Picasso Volume IV Ebook PDF epub 2022-04-07
Download Luigi Ballerini – Alla seconda umanità Ebook PDF epub 2022-04-07
Download Adam Thulin – Ett bord, flera smaker Ebook PDF epub 2022-04-07
Download A. Helwa – Geheimnisse der Göttlichen Liebe Ebook PDF epub 2022-04-10
Download Witness Lee – A Palavra Sagrada para o Reavivamento Matinal – A Economia de Deus na FÈ Ebook PDF epub 2022-04-09
Download Jona Dreyer – Bittersweet Christmas Ebook PDF epub 2022-04-10
Download Virginia Raquel Azcuy, Blanca Besa Bandeira & Clara María Temporelli – Marialogía Ebook PDF epub 2022-04-11
Download Zeina Latif – Nós do Brasil Ebook PDF epub 2022-04-11
Download DANTE GALLIAN – É próprio do humano Ebook PDF epub 2022-04-11
Download L. Galvan – Curando la gastritis Ebook PDF epub 2022-04-11
Download Florian Louis – Atlas historique de la Méditerranée (French Edition) Ebook PDF epub 2022-04-12
Download John Ridley & Christian Duce – I Am Batman (2021-) #8 Ebook PDF epub 2022-04-12
Download Mattia Sambruna – Manifesting Through Psychic Abilities: Discover Your Self to Unlock Your Hidden Power. Gain Awareness of Your Strengths and Develop Your Mental Faculties as Tools to Manifest the Life You Desire Ebook PDF epub 2022-04-12
Download Evie Dunmore – De charmante schurk Ebook PDF epub 2022-04-12
Download Blake Pierce – Das Perfekte Gerücht (Ein spannender Psychothriller mit Jessie Hunt—Band Neunzehn) Ebook PDF epub 2022-04-12
Download Karen M. McManus – Tú serás mi muerte Ebook PDF epub 2022-04-13
Download Sarah M. Anderson, Kat Cantrell & Katy Evans – Más allá del orgullo – Seis meses para enamorarte – Romance en el trabajo Ebook PDF epub 2022-04-14
Download Francois-xavier Fauvelle – Penser l’histoire de l’Afrique Ebook PDF epub 2022-04-14