National Multiple Sclerosis Week kicks off. The roadmap of appointments promoted by Aism (Italian Multiple Sclerosis Association) to provide information and awareness on sclerosis starts with the Scientific Congress of Fism (Italian Multiple Sclerosis Foundation) and the attribution of the Rita Levi Montalcini prize together with the prize for the best poster multiple, one of the most serious diseases of the central nervous system. World Multiple Sclerosis Day is celebrated on Monday 30 May in a setting of red-lit monuments throughout Italy, which will be held simultaneously in 70 countries around the world. And on Monday 30 May, Aism will present the Agenda of Sm and related pathologies 2025 at the Chamber of Deputies in Rome: concrete proposals in the field of health, inclusion, research, information, the result of the # 1000azionioltrelaSm consultation that has been through the entire movement of the SM, the institutions, the entire community, conceived and placed in the great challenges of recovery and development of the country, from the UN Agenda 2030 to the PNRR, to the national policies and programs of reference. An Agenda structured in mission lines, priorities, actions, supported by the data of the Multiple Sclerosis Barometer 2022 and based on the unavoidable rights of every person with MS and related pathology, family, caregiver, relaunched by a renewed Charter of Rights. Aism event on May 30th is also an opportunity to share and adhere to the renewed Aism Charter of the rights of people with MS and related diseases, already signed by over 60,000 people. A reinterpretation that consolidates the 7 rights already sanctioned in 2014: Health, Research, Self-determination, Inclusion, Work, Information, Active participation, re-proposed with even more strength, incisiveness, strategic vision and ideal aspiration, which are joined by 3 other rights clear from the widespread consultation: Education and Training, Simplification, Innovation, to form an authentic decalogue. “A charter that we ask to be signed by everyone because it is a pillar of the rights of people not only with SM but of all those who live with a condition of disability, serious pathology, fragility”, declares Francesco Vacca, president of Aism. interventions elaborated by Aism until 2025 identifies 4 mission lines for a total of 28 strategic priorities and 184 actions indicated for the improvement of the conditions of assistance, inclusion, participation of people with multiple sclerosis and related diseases and to win, together, the great research challenges. Mission lines that have a strong impact on people’s lives and on the community: interdisciplinary and person-centered taking charge, strengthening research, full social inclusion and participation, information, skills and empowerment. Each line, priority, action is rooted in evidence returned by the Barometer of the MS 2022, which this year offers a reconstruction projected over 5 years, highlighting achievements but also critical issues and gaps to be addressed. “An Agenda that accepts new challenges posed by emergencies and by the increasingly sudden and uncertain change in the times we live in; which wants to be increasingly a part of the country’s and community’s agenda, transforming work priorities and new responses into the common good, within but also beyond the reality of multiple sclerosis and related pathologies, diseases, disabilities. In this sense it is a concrete and innovative exercise of co-responsibility, co-programming and sharing, transparency and ability to give an account, sustainability, resilience and recovery “, declares Mario Battaglia, president of Fism – Italian Multiple Sclerosis Foundation. The barometer of the Sm. The effects of Covid19 on the levels of social and employment inclusion are alarming; 9 out of 10 centers have activated or enhanced remote services for the Covid-19 pandemic but half report problems due to inadequate IT equipment. Only 1 in 2 patients get psychological support from the public system. Access to treatment is also still very difficult: more than 1 in 3 patients do not receive free symptomatic drugs, essential for the treatment of the disease. The complete photograph of the SM in Italy will be presented and commented on Monday 30 May. On the occasion of the National Week of Multiple Sclerosis, Aism launches, through social media and on the association website, the video “The 10 things to know about multiple sclerosis” because, as Aism president Francesco Vacca says, “information is an indispensable ally for face the challenges of Sm “. In addition, from Giulia Sara Salemi to Charlie Moon, to Non sono Kristiano, the most famous Tik Tokers on the web take the field to support the fight against multiple sclerosis with the ‘Appearance deceives’ campaign, promoted from Aism to start on Monday 30 May, on the occasion of the World Day, on the main social and TV channels. ‘Appearance deceives’ aims to broaden knowledge about multiple sclerosis by clearly telling what it is, what it means to live with it and how much affects people’s lives. Gloria, Asia and Elisa bear their own direct testimony. Three young women, three different experiences, with one thing in common: multiple sclerosis. donate is 45512. The funds raised will go to support the study on the impact of the Covid-19 pandemic on the lives of people with MS and the project on the implementation of the Italian Multiple Sclerosis and Related Diseases Registry, an essential tool for research and organization of health and social services. The donation amounts will be 5 or 10 euros from a fixed network call Tim, Vodafone, WindTre, Fastweb and Tiscali, 5 euros from a fixed network call Twt, Convergenze and PosteMobile and 2 euros with SMS from a personal mobile phone WindTre, Tim , Vodafone, Iliad, PosteMobile, CoopVoce and Tiscali.
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