For those facing multiple sclerosis, difficulties in the world of work are increasing. “The data of the Barometer 2022 on multiple sclerosis and related diseases of Aism, the Italian Multiple Sclerosis Association confirm structural criticalities regarding access and job retention for the 133 thousand people who suffer from this chronic disease in our country. One in two people has never found the job for which they were qualified, 1 in 3 has lost it due to the disease, while only 20% have found employment with targeted placement, even if the requests have increased in the last 5 years for the inclusion in the lists of law 68 of 1999 “. This was underlined by Paolo Bandiera, Director of General Affairs and Institutional Relations of AISM, commenting, in a note, on the data published by the Court of Auditors on the management of the Fund for the right to work of disabled people, which indicate the inefficiencies of the Fund. “What emerges requires a serious reflection on the part of the institutions on what still needs to be done in Italy to implement the right to work of millions of citizens – continues Bandiera – The lack of institutional planning and consultation, the uncertainty on the times of employment of resources and access to incentives for employers, the absence of real essential levels of benefits for the insertion and retention of people with disabilities, determine a critical picture, which must be overcome starting from the full application of the new Guidelines for targeted placement, to which AISM itself contributed within the National Observatory for the implementation of the UN Convention on the rights of persons with disabilities “.” The 2022 edition of the Aims Barometer – reminds Bandiera – will be presented on Monday 30 May in the Chamber of Deputies, on the occasion of the World Multiple Sclerosis Day, together with the Agenda of mu sclerosis ltipla 2025, roadmap of intervention proposals to reduce inequalities and promote the full inclusion of people with disabilities in Italy. The launch of the Barometer data and the priorities of the 2025 Agenda, together with the Charter of the rights of people with multiple sclerosis and related diseases, their families and caregivers, constitute a further contribution of knowledge and concrete work proposals to address together the critical issues highlighted by the Court, from the entry into full operation of the database of targeted placement – he concludes – to the monitoring of the effects of incentives and to the evaluation of work placement interventions considering the actual net employment increase, to the implementation of the essential levels of services to which also the realization of reasonable accommodations “.
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