Molinari (Gaslini): ‘Adapt prophylaxis to haemophilic patients and their habits’

“The prophylaxis of the haemophilic patient must be adapted to his clinical needs, bearing in mind that the dosage of factor (factor VIII and IX, proteins whose deficiency is responsible for haemophilia, Ed) required changes depending on the person and his model of life “. There was also Angelo Claudio Molinari, hematologist of the Hemostasis and Thrombosis Center of the Gaslini Institute in Genoa, at the online meeting” Joint function in congenital coagulopathies: compromise, protection, rehabilitation and sporting activity “, promoted by Arlafe Onlus as part of the “Articoliamo in tour” campaign, which landed in Liguria for the tenth stage. “Articoliamo”, supported by Sobi with the patronage of FedEmo, promotes joint health care for people with haemophilia thanks to new services, training opportunities with specialists and a site full of general and specific information for the daily life of patients. “The risk of underestimating joint damage is always there – added o Molinari – for this reason we insist with patients on periodic checks, necessary to reveal the hemarthrosis, the micro-bleeding that are the real alarm bells of haemophilia. Ultrasound is a formidable and irreplaceable tool for seeing in detail inside the joint. “” With no other instrument can precise information on the health of the joints be obtained in a non-invasive way – explained Johanna Svahn, hematologist of the Hemostasis Center and thrombosis of the Gaslini Institute of Genoa – the ultrasound probe goes to specific sites to obtain images thanks to which the joint bone damage and the degree of synovitis (inflammation of the synovium, membrane that covers the inner part of the knee joint is assessed ), allows us to measure the bone, joint and synovial ‘score’ and is also an important tool for making clinical decisions on therapy “.