Rare diseases, hematologist: ‘With new hemophilia therapies, giant steps forward but compliance is needed’

“In the therapy for haemophilia, great strides have been made thanks to the enhancement of drugs such as those with a prolonged half-life, however compliance and a treatment plan adapted to the patient’s lifestyle also count, to have the maximum benefit”. Thus Gianna Franca Rivolta, hematologist at the Ssd Center for haemophilia and Mec of the Parma university hospital, underlined the importance of new therapies during the online meeting ‘The role of rehabilitation medicine in haemophilia: prevention and treatment’, promoted by Aves Odv – Hemophilic and similarmophilic voluntary association of Parma. “The other important aspect is joint monitoring – recalled the expert – which must be done during periodic check-ups. In Parma we have built a multidisciplinary group of specialists to allow complete patient care: from damage prevention joint with prophylaxis up to surgery and rehabilitation medicine “. During the online meeting, which took place as part of the ‘Articoliamo’ tour, a campaign supported by Sobi with the patronage of FedEmo and created to promote joint well-being in people with haemophilia, the various aspects of the disease were treated: from the importance of the multidisciplinary approach to the role of physical activity and physiotherapy, up to the treatment and prevention of joint damage.