Rare diseases, Lupi (FedEmo): ‘Soon our guidelines on haemophilia and sport’

“The issue of sports practicable by people with haemophilia is complex because there are no directives or guidelines. The clinicians themselves do not know what to suggest to the sports doctor. It is necessary to evaluate case by case, but FedEmo’s guidelines and haemophiliacs will soon arrive. they will be able to devote themselves to their favorite sport while minimizing the risk “. Thus Angelo Lupi, Secretary General of FedEmo, commented on the issue of sport in haemophilic patients during the online meeting ‘The role of rehabilitation medicine in haemophilia: prevention and treatment’, promoted by Aves Odv – Association of haemophilic and similarmophilic volunteers of Parma, as part of the ‘Articoliamo’ tour, a campaign supported by Sobi with the patronage of FedEmo. Regular and appropriate physical activity is in fact a key aspect in the management of haemophilia, which is necessary from an early age to prevent joint damage and keep the musculoskeletal system in good health. “When we find ourselves in front of a patient who wants to do a certain sport and is not willing to give it up, the guidelines are of little use – underlined Antonio Frizziero, specialist in physical and rehabilitative medicine, associate professor at the University of Parma – On the other hand, Coni cannot make a clear discrimination between sports granted to haemophiliacs and those that are not, because it must be evaluated case by case “.” I hope that an opening towards various degrees of participation will be reached – he concluded the specialist – but more contact is needed with the general practitioner, who has the patient’s medical history in hand; the coaches must make an effort to learn more about the disease and we must suggest what could happen, what is the maximum risk to which meets the musculoskeletal system “.